Eicosapentaenoic Acid (EPA) Internet Study

Updated 16-Mar-02

If your update does not appear here, please e-mail me Jerry@HDLighthouse.org .

It is hoped that this study will provide valuable information for those making health care decisions. The long term interest of this study is updates at least every three months for a year, but updates reporting changes at any time are important. Updating negative changes, or no changes or positive changes are all equally important.

Please take this opportunity to share your experience and contribute to what is known about EPA and HD. Join, yourself or your loved one, at any time. To enroll or update your data, click here.

# Nick Name Comments, Age, CAG, Drugs, Symptoms Reports, EPA Source, Side effects Reports Reports

1 Tom 50,male, CAG 45, quit all drugs except aspirin OmegaBrite 11/10/00
3xday for 2g EPA No side effects 11/17/00, feel better, quit aspirin, like the caps with coca-cola

2 Jeff age 38 Started with 2 caps a day of OmegaBrite on 11/10/00. Increased to 6 caps a day on 11/11/00 to effect the 2 grams of the original study. No result yet. 12/06/00 No ill effects from the fish oil. I believe there is some improvement with his overactive muscles. 12/30/00

3 Mrs. Puccini age 45 diag 4 yrs ago. May 00. Started 6 w-3, 1g/180mgEPA OmegaBrite caps/day. 11/18/00Maybe improvement. 11-Jan-02

4 Scott 37, male CAG 46, showing symptoms for a year and a half 10/03/00--Started taking 3 grams of EPA per day (weight=200lbs). 12/04/00-- Started to notice improvement in my health after 6 weeks on the EPA. 12/08/00 12/15/00
Last update 12Feb01.

5 John 37 yr, male.42 repeater. Subtle physical sx 6 mo.Cognitive & emotional problems 2yrs. 12/05/00:Foolishly conned initially when taking epa(salmon oil),the quantities quoted on bottle were for 2 capsules,stated in small print. 12/05/00 I do feel sharper and am more balanced now that I'm taking 2 gm & not 1. I have tried to objective. 12/07/00

Last update:
24-Apl-2001:

6 Mimi 69 yr old, female, CAG42; 12/05/00 Started Omega Brite 5-6 per day; am also taking 10 g creatine; 300 CoQ10 & other supplements.

7 Hope At-risk female. No cag repeat test. 10/05/00 EPA source: NOW Foods, Bloomingdale, IL 60108 "super EPA double strength" dose: 2180 mg EPA & 1440 mg DHA daily 12/05/00 I know my balance has deteriated somewhat in the last year or so.

8 Gayle 42, female, CAG=39, emotional symptoms=8-10 years, visible symptoms=2 years (include gait, chorea, confusion) 11/23/00 Spring Valley fish oil concentrate with omega-3 fatty acids 1000mg (EPA 360mg, DHA 240mg) Daily intake of 1800mg EPA (1.8 gm?) caused severe diarrhea. 12/05/00 No changes in HD symptoms due to the short trial cycle. Will consider trying another brand at a later date.

9 Maryann 44 CAG. Diagnosed 1/98. Retired on disability 5/99. Symptoms. Started taking fish-oil omega 3 from Walmart 10/7/00. 4 capsules 3x daily.I have had no ill effects from fish-oil capsules. 12/07/00 I felt less tired after about 5-6 wks on EPA.I also realize I have not fallen at all since starting EPA. Last Update:
05-Nov-01
07-Feb-01

10 Ben Age 52, at risk for HD, no CAG test. Suspect cognitive/emotional symptoms for last four years, no physical symptoms. Was taking 600mg. of Super EPA for 5 years, now taking 2,250mg. of OmegaBrite EPA + creatine, Co-Q10 and a host of anti-oxidants 12/09/00:Since increasing EPA dose to 2 Grams I'm experiencing a subjective sense of well being, less (or no) panic and anxiety. more Last Update 11Feb01

11 Patty 74 yr female symptoms- have always been more severe than sister Mimi's. Broke hip in July. In nursing home. 12/7/2000 Began Omega-brite 6/day; also taking creatine-2tsp/day.

12 Ladonna 59 years of age. Had to be placed in a nursing home 4 years ago. Can no longer walk, speak, sleeps all day. Has to be feed, dressed, ect. Taking natural high omega 3, Natural bounty fish oil. 3/day for 2000mgs. Contains DHA. Mom has been taking this for about 4 months. 12/15/00 updates: 06Mar2001

13 Rick Age 36 Physical symptoms started approximately 5-6 years ago (coordination, chorea, gait, balance). Started taking OmegaBrite fish oil 11/00, 6/day 12/15/00

14 Ruth Age 43 , cag?. Little chorea, much rigidity & spasm, total lack of coordination., Problems clapping my hands, and walking. 12/16/00: NATURE'S BOUNTY EPA 1000mg 3 times a day. Began 07/11/00. No side effects and no positive effects yet.

15 Jack 45M.Emotional outbursts,severe depression, lethargy,unable to work, slight chorea, clumsiness, slurred speech Dose: 2 grams EPA per day since October. 12Jan2001: Much more energy, has started work, no longer shows any symptoms of HD. Updates:
24-Jul-2001

16 Sarah 12F. School failure, severe jerking movements, difficulty getting words out Dose: 2 grams EPA per day since October 12Jan2001: Slight improvement with speech , less jerking of upper body, no obvious cognitive improvement. Updates:
24-Jul-2001

17 Mr. Kris 39M, CAG 51. Symptoms 2-3yrs wife est. 10 yrs mother est. Started EPA on 17Nov2000. Simultaneously taking 2 mg/day of Haldol 7Dec2000: Noticed improvement on balance and twitches. Stopped Haldol. More. Updates:

18 Roger 44M CAG 43, Risperdal,muscle control; Klondopin,agitation; Trazadone, sleep."Crashed" in September, meaning that he was too overwhelmed to continue working. EPA,"Sundown" omega3 fish oil,Wal-mart. Started Nov1999. .76gmsEPA/day,Zero side effects. 24Jan2001:Feels great,gained 25 lbs and has no outward signs of mental dysfunction. Swears it's the fish oil Updates:
20-May-2001

19. Michael M-38 6ft.-180lb.,1 aspirin/day, Symptoms: 1yr. slight facial and toe twitching. Also twitching in the ear canal region, chest, and arm muscles. 27Nov2000: Members Mark Omega 3, 180 mg EPA, 120 mg, 12/day; Vit; C 9gms/day, E 3600 iu, 2 multi-no iron; Seleniun 200 mcg/day;Saw palmetto 80mg/day;Calcium 2gm/day; Diet: Mediterranean, mostly veggie. Walk around 1 mile per day, work out once or twice per week 01Jan2001:All the twitches went away and about two weeks ago I decided to cut back my epa dosage from 2 grams to 1 gram per day. After about 10 days at reduced dosage, twitching started again in one of my toes and also on my eyelid. more:
Updates: 21Mar2001

20 Henry M-49,6'2"; henry is 49, symtomatic 1981. had balance deficits 1981 by 1982 would not admit or test for hd. by 1988 he had major balance problems and he was unable to work. He is third generation H.D family member.maternal gr.father, then mother, then him. he has children at risk as well as 7 other brothers and 4 sisters myself included. one other brother has hd, as well now and is sypmtomatic as well he is in his late 30's. More 27-Jan-2001 Updates:
25-Apl-2001

21 Cindy F-40, 5'8", 120lb, CAG 43.Drugs: clonopin, paxil Sx:Clumsy, poor communicator, poor housekeeper, facial twitches, grunts, night time movements and twitches at about 1 per second unless clonopin is in her system. Prone to irrational statements. Very coherent when angry, however.more. 01Jan01:Started OmegaBrite 1000mg 2 caps/day. / 06Feb01:Voice is clearer, less tired. Able to form complete sentences better, but still has trouble with word selection. Able to shake off depressing episodes and present a cheerful demeanor. more. Updates:
05-Apl-01

22 William M-57,5'11",190lb. Sx:8yr.,Chorea w/increasing dystonia.Still mobile & fairly independent but has balance & falling probs.The wheelchair seems to be on the horizon. Anger and apathy. Zyprexa has muted the anger AND calmed the chorea. He was hyperthyroid and had his thyroid ablated 3 yrs ago (now takes Synthroid). Drugs:Xyprexa 10mg/day Trazadone 250mg at nite 4 sleep. More. 10Dec00: Started OmegaBrite, 6 caps/day. 07Feb01:No changes. Updates:
23-Oct-01
21-Sep-01
31-Jul-01
05-May-01
30-Mar-01

23 Hal M-44, 6'1", 240lb. Sx:11yr., CAG 47 Sx:Mental decline has occurred over 11 years. Stopped working in 1998. Frequent falling since 1999. Twitches in face and hands since 1993. Difficulty speaking and following coversation. Difficulty getting food to mouth, buttoning shirts and most other activities. Drugs:Anafranill (antidepressant) 300 mg per day Resperidol 2.5 grams per day. Supplements:Ginko Biloba,E 300mg. Diet/Lifestyle: 06Oct00:Started Spring Valley-WalMart fish oil 12 caps/day(for 2gm EPA). 09Feb01: Began slow improvements in November, including less dramatic twitching, no more falls, became more involved in conversation. Ate his first plate of spaghetti in 8 months on January 27. Used the microwave on February 2 for the first time in several years. Can follow simple instructions now. Speaks with less struggle, but still has difficulty following conversation. Updates:
30-May-2001

24 peter M-35, 5'8 1/2",72Kg,CAG 41, Sx:over 7 years - minor but distinctive involuntary movements, moderate-severe depression and associated cognitive and motivational difficulties possibly due to disease pathology / early stage only. Drugs: none. Supplements vitE 500mg, ginko biloba 2000 mg dried leaf equiv. as tablet.Diet/Lifestyle 20Dec00:Started biodesign omega 3 fish oil, EPA/DHA=180/120 mg, 12 caps/day. 17Feb01Changes: Difficult to analyse cause/effect. Lower incidence of involutary movoment. Feel brighter re depression and general cognitive ability. All these things fluctuate but I feel generaly better. Also giving creatine a try along with currently listed substances - as of 18-2-2001 Updates:

25 CJay F-44, 5'4', 130lb. Sx:From Mar96,Memory(Loss) and depression, corea, Slight uncontrollable movements when tongue distended. Slight uncontrolable movements when checking grip. Drugs: Paxil. Diet/Lifestyle:Fish/Chicken/some meat still cooks, and walks/plays with dog. Started EPA 31Jan01, Spring Valley, EPA/DHA=360/240 mg, 4 caps/d Updates:

26 Marc M-36, 200lb,CAG43, Sx:1yr-Loss of coordination and concentration span.Detected slight body tremors. Handwriting became large and sloppy. I use a lot of math and I have detected some difficulties in the mathmatic process. Supplements: CoQ 90 mg Vitamin C 2000mg,Flax seed 3000mg, Multi B 1000mg, Raw Adrenal 1000mg, Cohline, Chromium Diet/Lifestyle:Low carb, higher protein,lots of vegetables. Exercise 45 minutes to an hour at least three times a week. EPAStarted 10/2000, Brand: Sam's Fish Oil, CapsDay: 15, vitE: 1200mg, Creatine: 1200mg 25-Mar-2001 Changes: In January I began to notice an improvement in handwriting, concentration and balance. I noticed that I do math in my head again. Its easier to concentrate for extended periods and I have less involuntary motion. All of these are subtle changes and not very apparent to the eye. Some losses I had not noticed until they improved. Updates:

27 Lynne Age:33F, Wt:56Kg, CAG:44, Sx:20mo, Recovering alcoholic & Depression Highly agitated and restless, less organisational ability, prone to anger outbursts and apathy, fatigue and lethargy,diminished balance and co-ordination, slurring S word sometimes, twitching toes and slight mouth twitching, usually when very tired. I have been taking Epo and fish oil ( min dosage)combined for 18mths. More hazy of thought, short term memory diminished substantially. Have smoked marijuana briefly (xmas 1999)which appeared to highten the symptoms dramatically particually depression and physical agitation. Diet/Lifestyle: Drugs: Supplements: EPAStartedDate: Nov 2000, Brand: Vitaplex or Golden Harvest, CapsDay: 12, vitE: 1000mg 23Apl-01: Comments: My sister, aged 35, has recently been diagnosed with early symptoms also. Updates:

28 Jeff W. M44, 150lb,42CAG, Symptoms July-01, Sx:In/out work due to depression, ticks/elbows out, facial ticks, Drugs:none, Supplements:Calcium 1362 mg, 1 a day multivite, Bcomplex+C, Glucosamine Sulfate 2 Gms, E 1230iu, C 360 mg,Diet/Lifestyle: Coffee, Nutrigrain bar, Lunch: varied, trout, Dinner:Macaronni, cheese. EPA:started 25-Jun-01, Sams, 12 caps/day, Reports:I have been out of work for 3 months and about broke. Just got enroled with VA due to Vietnam era vet. I want to get MRI/PET and try to get SS. 28-Jul-01
Comments:My oldest sister has HD she started EPA same day I did; 06/2000. My sister is on Risperdal Updates:
28-Jul-01

29 rfberard M40;CAG:44;210 lb.Symptomatic Yr/Mo 00/02. Depression, out burst, anger and not able to think and plan well at work. I would withdraw from any involvement in church, work and at home. I would leave work early to go home and sleep. EPA Started Nov 2000; Brand: Omegabrite; Caps/Day 6: Supplements: vitE 400iu; Was taking Q10 and stopped several weeks ago due to the study. 03-Aug-01
Changes: I'm very positive. My mind is clear and able to make logical decisions. I feel normal and very active at work. I'm involve more at church and home. I have lot less outburst and depression.
Updates:

30 Susan
More about: F34;CAG:?;160 lb. Symptomatic Yr/Mo 2/0. I see a neurologist regularly who says I have no clinical symptoms. However, I've had severe depression for years and increasing difficulties with memory and concentration the last 2 years. Diet/Lifestyle: Mediterranean diet, no dairy products or refined sugars. Exercise: 30 minutes of cardio and weights 3 times per week. Drugs: Parnate (60 mg/day) antidepressant, MAOI Trazedone (50 mg at bedtime) for sleep. Supplements: EPA Started 03-Sep-01; Brand: Omegabrite; Caps/Day 6: vitE 1200iu; Creatine 2.5 grams; Multivitamin, Antioxidant Softgels, Co Enzyme Q 10 (300 mg), Ginkgo Biloba, Flax Seed Oil, Vitamin C (1 gram). 24-Sep-01
Changes: No.
Updates:
31 Ross M49;CAG:42;175 lb.Symptomatic Yr/Mo 5/. Poor memory & falling down a lot. Overcome by Post-it notes. Less enegy & stressed out.
Drugs: Serzone 200mg/2xday.
Diet/Lifestyle: Vegie, Tofu, Soy Milk, walk 1/2 mile 3 times a week, accepting early retirement, hobbies playing Guthrie tunes & net a life. EPA Started May 2000; Caps/Day 2: Supplements: vitE 800iu; Creatine 15 gm; Vit C 2,000mg 16-May-02
Comments:Canada's part of a drug study on Salmon Oil vs. placebo. 8 friends are on it but I wouldn't give up my Salmon Oil to lose the benefits.
Updates:

Enroll and/or update your experience with EPA.

If you are already enrolled, click here to report.

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Questions? E-mail me: Jerry@HDLighthouse.org .

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Please enter name and data for this study:

name:
Male. Female. Caregiver. Person with HD.
CAG count if known: Age: Height: Weight:
Symptomatic: yr/mo.
Describe symptoms prior to taking EPA and health concerns other than HD:

About the supplement taken for EPA content:

Date started: Brand/product name:
EPA in each capsule: mg. DHA in each capsule: mg.
No.of capsules each day:

Other Supplements:

Vitamin E: mg/day. Creatine: gm/day.
Other supplements/amounts taken:

Life Style:

Describe diet / exercise / attitude:(Mediterranean, Weil, Vegie, Junk Food etc. / walk around block, walk to couch, bedridden, etc. / adjusted, psychotic, etc.)

Drugs/dose:

Report:

Target dates to report are quarterly, on the first of April, July, October and January but report changes at any time.
If already enroled, include the name or number from the above chart:
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No changes, everything is shown on chart and updates. Changes described below:

Additional comments:

"Start Over" will erase all your data.

Your input is appreciated --Jerry 23Jan2001

#	Nick Name	Comments, Age, CAG, Drugs, Symptoms	Reports, EPA Source, Side effects	Reports	Reports
1	Tom	50,male, CAG 45, quit all drugs except aspirin	OmegaBrite 11/10/00 3xday for 2g EPA	No side effects 11/17/00, feel better, quit aspirin, like the caps with coca-cola
2	Jeff	age 38	Started with 2 caps a day of OmegaBrite on 11/10/00. Increased to 6 caps a day on 11/11/00 to effect the 2 grams of the original study. No result yet.	12/06/00 No ill effects from the fish oil. I believe there is some improvement with his overactive muscles.	12/30/00
3	Mrs. Puccini	age 45 diag 4 yrs ago.	May 00. Started 6 w-3, 1g/180mgEPA OmegaBrite caps/day.	11/18/00Maybe improvement.	11-Jan-02
4	Scott	37, male CAG 46, showing symptoms for a year and a half	10/03/00--Started taking 3 grams of EPA per day (weight=200lbs).	12/04/00-- Started to notice improvement in my health after 6 weeks on the EPA.	12/08/00 12/15/00 Last update 12Feb01.
5	John	37 yr, male.42 repeater. Subtle physical sx 6 mo.Cognitive & emotional problems 2yrs.	12/05/00:Foolishly conned initially when taking epa(salmon oil),the quantities quoted on bottle were for 2 capsules,stated in small print.	12/05/00 I do feel sharper and am more balanced now that I'm taking 2 gm & not 1. I have tried to objective.	12/07/00 Last update: 24-Apl-2001:
6	Mimi	69 yr old, female, CAG42;	12/05/00 Started Omega Brite 5-6 per day; am also taking 10 g creatine; 300 CoQ10 & other supplements.
7	Hope	At-risk female. No cag repeat test.	10/05/00 EPA source: NOW Foods, Bloomingdale, IL 60108 "super EPA double strength" dose: 2180 mg EPA & 1440 mg DHA daily	12/05/00 I know my balance has deteriated somewhat in the last year or so.
8	Gayle	42, female, CAG=39, emotional symptoms=8-10 years, visible symptoms=2 years (include gait, chorea, confusion)	11/23/00 Spring Valley fish oil concentrate with omega-3 fatty acids 1000mg (EPA 360mg, DHA 240mg) Daily intake of 1800mg EPA (1.8 gm?) caused severe diarrhea.	12/05/00 No changes in HD symptoms due to the short trial cycle. Will consider trying another brand at a later date.
9	Maryann	44 CAG. Diagnosed 1/98. Retired on disability 5/99. Symptoms.	Started taking fish-oil omega 3 from Walmart 10/7/00. 4 capsules 3x daily.I have had no ill effects from fish-oil capsules.	12/07/00 I felt less tired after about 5-6 wks on EPA.I also realize I have not fallen at all since starting EPA.	Last Update: 05-Nov-01 07-Feb-01
10	Ben	Age 52, at risk for HD, no CAG test. Suspect cognitive/emotional symptoms for last four years, no physical symptoms.	Was taking 600mg. of Super EPA for 5 years, now taking 2,250mg. of OmegaBrite EPA + creatine, Co-Q10 and a host of anti-oxidants	12/09/00:Since increasing EPA dose to 2 Grams I'm experiencing a subjective sense of well being, less (or no) panic and anxiety. more	Last Update 11Feb01
11	Patty	74 yr female symptoms- have always been more severe than sister Mimi's. Broke hip in July. In nursing home.	12/7/2000 Began Omega-brite 6/day; also taking creatine-2tsp/day.
12	Ladonna	59 years of age. Had to be placed in a nursing home 4 years ago. Can no longer walk, speak, sleeps all day. Has to be feed, dressed, ect.	Taking natural high omega 3, Natural bounty fish oil. 3/day for 2000mgs. Contains DHA. Mom has been taking this for about 4 months.	12/15/00	updates: 06Mar2001
13	Rick	Age 36 Physical symptoms started approximately 5-6 years ago (coordination, chorea, gait, balance).	Started taking OmegaBrite fish oil 11/00, 6/day	12/15/00
14	Ruth	Age 43 , cag?. Little chorea, much rigidity & spasm, total lack of coordination., Problems clapping my hands, and walking.	12/16/00: NATURE'S BOUNTY EPA 1000mg 3 times a day. Began 07/11/00. No side effects and no positive effects yet.
15	Jack	45M.Emotional outbursts,severe depression, lethargy,unable to work, slight chorea, clumsiness, slurred speech Dose: 2 grams EPA per day since October.	12Jan2001: Much more energy, has started work, no longer shows any symptoms of HD.	Updates: 24-Jul-2001
16	Sarah	12F. School failure, severe jerking movements, difficulty getting words out Dose: 2 grams EPA per day since October	12Jan2001: Slight improvement with speech , less jerking of upper body, no obvious cognitive improvement.	Updates: 24-Jul-2001
17	Mr. Kris	39M, CAG 51. Symptoms 2-3yrs wife est. 10 yrs mother est. Started EPA on 17Nov2000. Simultaneously taking 2 mg/day of Haldol	7Dec2000: Noticed improvement on balance and twitches. Stopped Haldol. More.		Updates:
18	Roger	44M CAG 43, Risperdal,muscle control; Klondopin,agitation; Trazadone, sleep."Crashed" in September, meaning that he was too overwhelmed to continue working.	EPA,"Sundown" omega3 fish oil,Wal-mart. Started Nov1999. .76gmsEPA/day,Zero side effects.	24Jan2001:Feels great,gained 25 lbs and has no outward signs of mental dysfunction. Swears it's the fish oil	Updates: 20-May-2001
19.	Michael	M-38 6ft.-180lb.,1 aspirin/day, Symptoms: 1yr. slight facial and toe twitching. Also twitching in the ear canal region, chest, and arm muscles.	27Nov2000: Members Mark Omega 3, 180 mg EPA, 120 mg, 12/day; Vit; C 9gms/day, E 3600 iu, 2 multi-no iron; Seleniun 200 mcg/day;Saw palmetto 80mg/day;Calcium 2gm/day; Diet: Mediterranean, mostly veggie. Walk around 1 mile per day, work out once or twice per week	01Jan2001:All the twitches went away and about two weeks ago I decided to cut back my epa dosage from 2 grams to 1 gram per day. After about 10 days at reduced dosage, twitching started again in one of my toes and also on my eyelid. more:	Updates: 21Mar2001
20	Henry	M-49,6'2"; henry is 49, symtomatic 1981. had balance deficits 1981 by 1982 would not admit or test for hd. by 1988 he had major balance problems and he was unable to work. He is third generation H.D family member.maternal gr.father, then mother, then him. he has children at risk as well as 7 other brothers and 4 sisters myself included. one other brother has hd, as well now and is sypmtomatic as well he is in his late 30's. More	27-Jan-2001	Updates: 25-Apl-2001
21	Cindy	F-40, 5'8", 120lb, CAG 43.Drugs: clonopin, paxil Sx:Clumsy, poor communicator, poor housekeeper, facial twitches, grunts, night time movements and twitches at about 1 per second unless clonopin is in her system. Prone to irrational statements. Very coherent when angry, however.more.	01Jan01:Started OmegaBrite 1000mg 2 caps/day. /	06Feb01:Voice is clearer, less tired. Able to form complete sentences better, but still has trouble with word selection. Able to shake off depressing episodes and present a cheerful demeanor. more.	Updates: 05-Apl-01
22	William	M-57,5'11",190lb. Sx:8yr.,Chorea w/increasing dystonia.Still mobile & fairly independent but has balance & falling probs.The wheelchair seems to be on the horizon. Anger and apathy. Zyprexa has muted the anger AND calmed the chorea. He was hyperthyroid and had his thyroid ablated 3 yrs ago (now takes Synthroid). Drugs:Xyprexa 10mg/day Trazadone 250mg at nite 4 sleep. More.	10Dec00: Started OmegaBrite, 6 caps/day.	07Feb01:No changes.	Updates: 23-Oct-01 21-Sep-01 31-Jul-01 05-May-01 30-Mar-01
23	Hal	M-44, 6'1", 240lb. Sx:11yr., CAG 47 Sx:Mental decline has occurred over 11 years. Stopped working in 1998. Frequent falling since 1999. Twitches in face and hands since 1993. Difficulty speaking and following coversation. Difficulty getting food to mouth, buttoning shirts and most other activities. Drugs:Anafranill (antidepressant) 300 mg per day Resperidol 2.5 grams per day. Supplements:Ginko Biloba,E 300mg. Diet/Lifestyle:	06Oct00:Started Spring Valley-WalMart fish oil 12 caps/day(for 2gm EPA).	09Feb01: Began slow improvements in November, including less dramatic twitching, no more falls, became more involved in conversation. Ate his first plate of spaghetti in 8 months on January 27. Used the microwave on February 2 for the first time in several years. Can follow simple instructions now. Speaks with less struggle, but still has difficulty following conversation.	Updates: 30-May-2001
24	peter	M-35, 5'8 1/2",72Kg,CAG 41, Sx:over 7 years - minor but distinctive involuntary movements, moderate-severe depression and associated cognitive and motivational difficulties possibly due to disease pathology / early stage only. Drugs: none. Supplements vitE 500mg, ginko biloba 2000 mg dried leaf equiv. as tablet.Diet/Lifestyle	20Dec00:Started biodesign omega 3 fish oil, EPA/DHA=180/120 mg, 12 caps/day.	17Feb01Changes: Difficult to analyse cause/effect. Lower incidence of involutary movoment. Feel brighter re depression and general cognitive ability. All these things fluctuate but I feel generaly better. Also giving creatine a try along with currently listed substances - as of 18-2-2001	Updates:
25	CJay	F-44, 5'4', 130lb. Sx:From Mar96,Memory(Loss) and depression, corea, Slight uncontrollable movements when tongue distended. Slight uncontrolable movements when checking grip. Drugs: Paxil. Diet/Lifestyle:Fish/Chicken/some meat still cooks, and walks/plays with dog.	Started EPA 31Jan01, Spring Valley, EPA/DHA=360/240 mg, 4 caps/d	Updates:
26	Marc	M-36, 200lb,CAG43, Sx:1yr-Loss of coordination and concentration span.Detected slight body tremors. Handwriting became large and sloppy. I use a lot of math and I have detected some difficulties in the mathmatic process. Supplements: CoQ 90 mg Vitamin C 2000mg,Flax seed 3000mg, Multi B 1000mg, Raw Adrenal 1000mg, Cohline, Chromium Diet/Lifestyle:Low carb, higher protein,lots of vegetables. Exercise 45 minutes to an hour at least three times a week.	EPAStarted 10/2000, Brand: Sam's Fish Oil, CapsDay: 15, vitE: 1200mg, Creatine: 1200mg	25-Mar-2001 Changes: In January I began to notice an improvement in handwriting, concentration and balance. I noticed that I do math in my head again. Its easier to concentrate for extended periods and I have less involuntary motion. All of these are subtle changes and not very apparent to the eye. Some losses I had not noticed until they improved.	Updates:
27	Lynne	Age:33F, Wt:56Kg, CAG:44, Sx:20mo, Recovering alcoholic & Depression Highly agitated and restless, less organisational ability, prone to anger outbursts and apathy, fatigue and lethargy,diminished balance and co-ordination, slurring S word sometimes, twitching toes and slight mouth twitching, usually when very tired. I have been taking Epo and fish oil ( min dosage)combined for 18mths. More hazy of thought, short term memory diminished substantially. Have smoked marijuana briefly (xmas 1999)which appeared to highten the symptoms dramatically particually depression and physical agitation. Diet/Lifestyle: Drugs: Supplements:	EPAStartedDate: Nov 2000, Brand: Vitaplex or Golden Harvest, CapsDay: 12, vitE: 1000mg	23Apl-01: Comments: My sister, aged 35, has recently been diagnosed with early symptoms also.	Updates:
28	Jeff W.	M44, 150lb,42CAG, Symptoms July-01, Sx:In/out work due to depression, ticks/elbows out, facial ticks, Drugs:none, Supplements:Calcium 1362 mg, 1 a day multivite, Bcomplex+C, Glucosamine Sulfate 2 Gms, E 1230iu, C 360 mg,Diet/Lifestyle: Coffee, Nutrigrain bar, Lunch: varied, trout, Dinner:Macaronni, cheese.	EPA:started 25-Jun-01, Sams, 12 caps/day, Reports:I have been out of work for 3 months and about broke. Just got enroled with VA due to Vietnam era vet. I want to get MRI/PET and try to get SS.	28-Jul-01 Comments:My oldest sister has HD she started EPA same day I did; 06/2000. My sister is on Risperdal	Updates: 28-Jul-01
29	rfberard	M40;CAG:44;210 lb.Symptomatic Yr/Mo 00/02. Depression, out burst, anger and not able to think and plan well at work. I would withdraw from any involvement in church, work and at home. I would leave work early to go home and sleep.	EPA Started Nov 2000; Brand: Omegabrite; Caps/Day 6: Supplements: vitE 400iu; Was taking Q10 and stopped several weeks ago due to the study.	03-Aug-01 Changes: I'm very positive. My mind is clear and able to make logical decisions. I feel normal and very active at work. I'm involve more at church and home. I have lot less outburst and depression.	Updates:
30	Susan More about:	F34;CAG:?;160 lb. Symptomatic Yr/Mo 2/0. I see a neurologist regularly who says I have no clinical symptoms. However, I've had severe depression for years and increasing difficulties with memory and concentration the last 2 years. Diet/Lifestyle: Mediterranean diet, no dairy products or refined sugars. Exercise: 30 minutes of cardio and weights 3 times per week. Drugs: Parnate (60 mg/day) antidepressant, MAOI Trazedone (50 mg at bedtime) for sleep.	Supplements: EPA Started 03-Sep-01; Brand: Omegabrite; Caps/Day 6: vitE 1200iu; Creatine 2.5 grams; Multivitamin, Antioxidant Softgels, Co Enzyme Q 10 (300 mg), Ginkgo Biloba, Flax Seed Oil, Vitamin C (1 gram).	24-Sep-01 Changes: No.	Updates:
31	Ross	M49;CAG:42;175 lb.Symptomatic Yr/Mo 5/. Poor memory & falling down a lot. Overcome by Post-it notes. Less enegy & stressed out. Drugs: Serzone 200mg/2xday. Diet/Lifestyle: Vegie, Tofu, Soy Milk, walk 1/2 mile 3 times a week, accepting early retirement, hobbies playing Guthrie tunes & net a life.	EPA Started May 2000; Caps/Day 2: Supplements: vitE 800iu; Creatine 15 gm; Vit C 2,000mg	16-May-02 Comments:Canada's part of a drug study on Salmon Oil vs. placebo. 8 friends are on it but I wouldn't give up my Salmon Oil to lose the benefits.	Updates: