Maryann Reports

05-Nov-01

Changes

Sorry I haven't reported in before this.

I've been on EPA/fishoil for a full year now,since 10/2000. I have only fallen once,which is remarkable,since for several yrs prior to that,I fell at least once a month. I find myself able to catch myself now,instead of falling down.

I see my neurologist every 6 mos.Last appt was in 7/01. Again,he said "You are doing great.You aren't any worse than last time."He complimented me on doing so well and on handling the fact that I have HD so positively. He knows about the EPA & thinks it is OK.

Also,yesterday my husband had an appt w/our family dr,who we've gone to for 13 yrs.The dr told my husband "Every time I see your wife I can't believe how good she looks & how well she is doing."I love our family dr;when I found out I had HD I said I would never go on Haldol.He told me he treated HD patients in the Army in the 1970s & they were told to put everybody w/HD on Haldol.

I've been taking Costco brand fish oil soft gels for about 4 months.They have 360 mg EPA & 240 mg DHA(for 2 capsules)

I've never had any side effects.I can't tell if there is any change in my thinking--I still can't remember words,slur Rs & Ls sometimes,and I still can't think about more than 1 thing at a time.The only meds I take are Levothyroxine, Prozac, estrogen/progesteron & calcium. I think my chorea is about the same. Strangers either don't notice or think I act "nervous"; medical people know I have something.

Thank you,thank you,thank you,Jerry for everything you have done & are doing. It seems like so many things are right there on the horizon now.

07Feb01:

Changes: Jerry--one of my symptoms is memory problems.That's why I keep forgetting this: I believe your autoimmune theory of HD.When I was 45 yr old,I got Hashimoto's Thyroiditis,which is an autoimmune disease.My thyroid does not function, & I've taken Levothyroxine ever since. I also have tree & weed allergies.

02Feb01:

Comments:

Formula brand at commissary.250 capsules for $7.My balance continues to improve--no falls at all since 9/2000. Husband,relatives & friends say I look better & walk better.Went to my neurologist 1/2001--he said my condition hadn't worsened over last 6 mos.Told him about EPA & he said he didn't think it could hurt.

Symptoms:

my age--53 yrs. corrected CAG count is 44[I erroneously told you it was 42]I started taking fish-oil capsules w/omega 3 10/2000,4 capsules 3 x day. past 2 mos have been buying Pharmacist