Epa Study Updates
Scott Reports
===From: Scott -- Subject: Beth -- Thu Apr 5 13:56:04 2001 GMT===
Hi Beth, Yes I'm still getting worse. I'm very tired all day, and shaky. Facial grimacing. Making my snorting noise
again. Poor coordination. I'm falling several times a day. My back is very sore from one of the falls I had a few days
ago. I stopped the fish oil about a week ago. I think I'll go one more week without it, then restart it.
===From: Scott -- Subject: X -- Tue Mar 27 14:45:11 2001 GMT===
... I stopped taking the fish oil. I'm thinking about going without it a few
weeks to clean by body of it.
===From: Scott -- Subject: Getting Worse -- Mon Mar 26 21:36:12 2001 GMT===
My symptoms are definitely getting worse. I few months ago I had no symptoms during the day. Now I'm getting bad.
Each day I feel worse. I'm almost to the point where I need to go on disability. I still have one more hour of work left,
and I can barely stay awake. My energy is gone. My memory is getting bad, My twitching is showing during the day
again. I'm falling several times each day. My face and mouth are distoring, my fingers feel very clumsy.
12Feb01
M-37, 5'11'',200lb., CAG-46;Sx2yr.;minocycline 50mg/d,Paxil 40 mg/d,Inderal 200mg/d, Clonozinpane 1.2 mg/d;Supplements: Creatine 10 g/d, E 1600mg/d,multi vit, gingko, melatonin; EPA/DHA 180/120 mg/mg 18/d.
Changes:
Symptoms during the day are gone, since going back on the Sam's Club Omega-3, balance is excellent, full of energy all day.
Diet/Lifestyle:
Chemist, still working, extrteme optimist, expect to beat this disease and live to the age of 100 in excellent health, eat low fat foods, do like pastries, exercise bike 30 minutes a day, and care for my 3 horses, I also ride them, on my feet all day at work.
Comments:
Jerry the new site is wonderfull, we all appreciate the time and effort on your part. Without you I would have been home on disability. Thank you so much!!!!!You are the reason I'm doing so well!!!!!
===From: Scott -- Subject: EPA / DHA -- Mon Feb 5 19:12:51 2001 GMT===
I've been on the 500 mg EPA 0 mg DHA for a few weeks now. I'm definitely not doing very well. I get out of bed in
the morning feeling tired and that feeling never goes away. My hands are twitchy and I've started falling again, in
the evening. I fell out of a chair a few days ago. I was doing much better several weeks ago on the Sam's Club
Omega-3 fish oil that contained both EPA and DHA. I've changed my order with Ocean Essentials so that I will be
shipped their product that contains both EPA and DHA. I think both EPA and DHA are required.
"Data in humans suggest that neural membranes are characterized by high concentrations of DHA ( approximately
31% in adult human cerebral cortex ) which suggest the important role in central nervous system functioning."
LAX-101 contains 99% EPA, I wonder if will be as effective as a mixture of EPA and DHA?
Update - 12/29/00 -
It's been about 3 months now on 3 grams of EPA per day. My symptoms during the day are extremely minor. I have very slight balance trouble and almost no twitching in my chest, hands or feet, during the day. I don't get sleepy at all during the day. I'm full of energy all day long. I feel wonderful. At night I twitch a little more than during the day, but it's very slight.
I have also started taking Ginkgo Baloba and Vitamin E.