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HD Lighthouse Contributing Editor's Comment: Researchers now know that a direct effect of an expanded Interesting Transcript 15 (the HD gene) is the down regulation of BDNF (ref). Lower brain levels of BDNF are associated with depression (ref). Exercise and diet may be the most effective way to restore BDNF (ref). It is better to light a candle than to cry our against the darkness. I hope that everyone that reads the Huntington's Disease Lighthouse will join Phil as a proactive HD advocate. Help get the word out on all the exciting new things that are known about HD. Help with Phil's Zero Suicides Campaign. Add your point of light. -- Jerry Lampson
We can unit to raise awareness of depression while eliminating suicide
Together we can make a difference by lowering this unacceptable loss of precious lives! Zero Suicide CampaignPhil Hardt In the heat of our newly advocacy roles I almost forgot to send you my latest “campaign” handout that I rolled out last week in Michigan: HD-Affected Depression. Since the appalling suicide rate for those with HD is greater than 7-8 times the national average, and since HDSA sees no need to approach a big manufacturer of anti-depressants to get them to underwrite a National program to raise awareness of depression’s double whammy in HD, and since I brought it up in my reform speech last July, I felt obligated to begin a grassroots campaign to eliminate the suicides we are compelled to still live with because of untreated/unacknowledged HD-Affected Depression. Last year alone, our support group in Tucson, AZ experienced 2 HD-affected suicides. Our current national suicide rate is appalling and I hope by posting this information and by encouraging others to make, distribute and discuss this handout at their support groups and AGMs, we can unit to raise awareness of depression while eliminating suicide. I started distributing this handout and talking about what it contains last weekend while speaking at the Michigan Chapter Annual General meeting. I encourage everyone who can to do the same. When making a tri-fold handout I copy page 2 onto the back of page 1. Page 3, the reference sheet is separate. Page 4 can be blown up to poster size (costs about $4 at Kinko’s for a 2’ x 3’ black and white poster) and placed up to get everyone’s attention at your next meeting. The handouts should be placed close by! Thank you for helping me with this very important Zero Suicides Campaign! -- Phil Suicide Prevention Brochure (pdf) Source: HDlighthouse.org
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Articles discussing CAG mutation in HD
Research related to Juvenile HD
Research on factors influencing the age of onset
Research related to symptoms caused by HD
27 Aug 2006
Phil Hardt on Social Security Revised
If you are looking for assistance with applying for social security disability for someone disabled by Huntington's Disease then you will find it hard to more help than what Phil offers here.
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